Since fall is almost here, I thought I’d update you on my summer and some of why I haven’t been writing!
I am so grateful for the wonderful trip Jeff and I had with Nate in July. There were lots of fun moments, many laughs, and much to look back on with a smile. I am especially grateful because the memories of Maine have sustained me through the last few difficult weeks.
To get an accurate picture of what’s been going on, we must first go back a bit. I’ve been having pain in my back for several months. Of course, I’m 48 so dealing with aches and pains is the new normal! I was also dealing with a cough that began with a cold in February and hung on through mid-June. During the time I was living with the cough, my ENT performed transnasall esophagoscopy multiple times and prescribed several rounds of antibiotics, steroids and other drugs to combat the cough – unfortunately, the large doses of meds led to a case of oral thrush. I never really thought much about thrush until I had it….I thought it was something babies got, not adults.
Needless to say, with all of the meds and appointments and poking and prodding of my sinuses I had my fill (more than my fill) of being sick, feeling run down and seeing docs (not that I have anything personal against my docs – they are fine people, but I like them better when I don’t have to see them as a patient!!!).
So when the sporadic backache began, I filed it under the “suck it up, cupcake, you’re getting older” column. As it continued sporadically and then more regularly, I filed it under the “we need a new mattress” column. But just before we left for Maine I stared having pain in my lower left abdomen. Again, I filed that pain under the heading of “getting older” and movedon.org. But the pain in my abdomen continued to get worse during vacation, so on the last day I called my OB/Gyn and made an appointment for the day after we arrived home.
My regular OB doc was on vacation so I saw another doc in the practice who did some tests and then sent me for an ultrasound that ultimately revealed nothing. Because the tests showed nothing OB/G related, the doc thought the next best course of action was to see a gastroenterologist.
That takes us to August 5th. A day mostly like any other. I wrote a post, did some laundry and some work on upcoming classes and then turned my attention to getting ready for a short trip to NYC that was to start on 8/7. When Jeff arrived home I was putting a second coat of polish on my toenails and thinking about what to pack so he said three of my favorite words – “I’ll make dinner.” After dinner we sat town to watch an episode of Homeland.
About three-quarters of the way through the show I asked him to pause – I was VERY suddenly feeling ill. I was dizzy and nauseated and feeling simultaneously cold and clammy. I ran into the bathroom – sure I was going to be sick – and arrived just in time to look in the mirror and watch all the color drain from my face. It was such a strange experience – like a reverse blush. I composed myself and went to lie down only to have the pain in my back and abdomen rip through me like a boning knife. I had no idea what was going on, but I knew I needed a trip to the ER.
And so it began.
I could not sit up at the ER and one of the last things I remember clearly is the person checking me in saying that they had nowhere for me to lie down. I remember thinking, “isn’t this a hospital?” and then finally just saying that I’d just lie on the floor – that’s how bad the pain was. They found a two-seater chair for me to lie on and Jeff moved another chair near it so I could put my feet up.
I remember the ER doc coming in and talking to me but I couldn’t tell you anything substantive about the conversation. I know he asked me some questions about my medical history and family history, but I have no recollection of the actual questions or my answers. The next thing I remember was hanging on to Jeff’s arm as he guided me to a bed where I was finally given IV fluids and pain meds, which gave me a little relief.
The doc came back in to ask some more questions after which he told us he thought, based upon my symptoms, that I was either dealing with a kidney stone or diverticulitis. He told me he was going to have me drink some contrast in preparation for a CT scan. The nurse came back in and explained that I’d have 60 minutes to drink the contrast – that I should not try to drink it all at once, but to pace myself over the 60 minutes – and then I’d have to wait 60 minutes before they did the scan.
The first 15 – 20 minutes were ok. I was able to drink the contrast without incident, but then the pain and nausea came back in full force. I couldn’t lie still for more than a few seconds. I drank as much of the remaining contrast as I could within the hour and tossed and turned – waiting for the test – until I couldn’t stand the pain any longer. Just before the technician came to take me for the scan, Jeff went in search of the nurse, a pan in case I got sick and more pain meds. I went for the scan and when I came back the nurse added some pain meds to my IV, which helped me relax a bit as we waited for the test results.
The CT scan revealed two kidney stones – one still in the kidney and one in the ureter, just at the opening of the bladder. I was sent home with a prescription for pain meds, an order to drink as much water as I could stand, and a “hat and strainer.” Oh they joys of straining your urine each time you pee – it’s kind of like panning for gold only you’re hoping to find that you’ve passed a kidney stone.
It was obvious that our trip to NYC was not to be so we cancelled our hotel and class reservations and waited for the
storm stone to pass. On Monday, I called the urologist as instructed and got an appointment for Wednesday. I arrived at my appointment a few minutes early to fill out paperwork and give a urine sample. The nurse took my vitals and then the doc came in and we discussed the situation. Because of the length of time I’d been experiencing back then back/abdominal pain and because I’d been trying to pass the stone for approximately 5 days since it had been discovered and because I had an elevated temperature, an outpatient ureteroscopy was scheduled for the following afternoon.
On Thursday afternoon, I picked Jeff up from work and we headed to Harrisburg Hospital. I checked in with a wonderfully comforting woman named Nikki – she was so nice and calm and kind -and was taken to pre-op where we waited. Unfortunately my doc had an emergency surgery to do so that pushed my surgery back; however I was grateful that I wasn’t the emergency surgery so I alternated between talking with Jeff and surfing the web on my phone (oh, and complaining a bit about how hungry I was). Finally it was my turn…..I was whisked into the OR, my IV had to be moved from one hand to the other because it clotted while I was waiting, and the anesthesiologist came in to get started – little did I know, the anesthesia was already started and by the time the anesthesiologist came in to talk to me I already felt that familiar “2-large-glasses-of-wine warmth.” The next thing I knew I was waking up in the OR and the nurse told me I was done and that the surgery had taken 10 minutes. Yes, you read that right! I spent a little time in recovery, reviewed my discharge instructions with the nurse and was released. I was no longer as hungry as I had been so Jeff made a quick stop at the grocery store on the way home to get some ingredients to make me a nice soup. When we got home I changed into my jammies, took some meds and crawled into bed.
Friday was as you would expect – I was recovering, watching television, reading, moving around a lot due to the discomfort from the stent and trying not to wear out Jeff’s hospitable mood with all my requests.
Saturday morning I woke up feeling fantastic – better than I’ve felt in months. In fact, Jeff commented that my sassiness was back (I believe much to his chagrin). Longing for a reason to get out of the house, we called my mom and dad and decided to go out for breakfast to celebrate my dad’s birthday.
After being out of the house for a few hours I began to feel wrung out – so we headed home and I climbed back into bed. I napped with the t.v. on and got out of bed to drink water, get rid of the water I drank and to eat a little dinner, but I wasn’t really hungry.
Saturday night I tossed and turned and woke up several times to drink water. When I got up to use the bathroom, I felt lightheaded so I leaned against the bed and waited for the dizziness to pass. I made it down the hall to the powder room and got dizzy again. After I used the bathroom and washed my hands I headed back to our room – but on the way I started to get that fuzzy, black-out feeling you get just before you pass out. So I immediately sat down where I was and called for Jeff.
He came out of the bedroom, asked me what was wrong and called the surgeon who sent us back to the ER. As it turned out, I had an infection and required more large doses of IV antibiotics, which they gave me while I dozed and poor Jeff tortured his back in the uncomfortable chair in my room. After filling me up with antibiotics and fluids the doctor discharged me with a prescription for more antibiotics and a snarky statement. She said (and not in a helpful tone), “Good luck getting that stent out. I’ve never had it done but I hear it’s painful.” Really? REALLY? Did she think she was being helpful – because let me tell you when you’ve already been through the pain of kidney stones (which I’m told is worse than giving birth – since I’ve never given birth I cannot make the comparison), been poked and prodded with your most personal bits on display for all the OR staff to see, and had a stent in your ureter, I can assure you that you do not need or want snarky comments from anyone, let alone the doctor “caring” for you.
On the way home from the ER we picked up the new prescription. When we got home, I added the new pill bottle to all the others and was completely overwhelmed by the amount of meds on the kitchen counter. I wanted to just swipe them all into the trash and hide under the covers.
Looking back, I wish I had – because all the antibiotics led to another case of thrush. I don’t know if any of you have ever had a case of thrush, but to me it was awful. I felt generally run down and my mouth tingled – as if I’d been sucking on nickels for days. My tongue was swollen with a white-ish coating. Nothing tasted like it should and it made my desire to consume water nearly non-existent….which was not great considering I was supposed to keep drinking large quantities of water.
I made it through Sunday, Monday & Tuesday with a metallic taste in my mouth, periodic twinges from the stent and continued back pain. On Tuesday I nervously went to the surgeon’s office to have the stent removed. My blood pressure was sky-high because I was so nervous about the removal thanks to the ER doc’s kind words. Again, I was feeling vulnerable with my personal bits on display, but the doc began asking me questions about work and before I knew it he said, “OK” and was done. I didn’t feel a thing, which was a relief but made me want to go back to the ER and punch that snarky doc in the face!
I was hopeful that the stent removal would be the end of the pain, but it was not. I still – weeks later – have a significant amount of pain in my back and still have the twinges in my lower left abdominal area. I’ve been back to the urologist, back to my OB-GYN, and am now waiting for an appointment with a back doc.
Needless to say, it’s been a long summer. I’ve had down days, but they’ve been very few and far between – somehow I’ve managed to keep my sense of humor through it all. I appreciate the support of my loving husband and some wonderful friends. They’ve kept me mostly smiling and optimistic!!!! A special thanks to Tammy and Brittany who bought me a wonderful recovery gift – chocolate kidneys! Yes, that’s right – on a trip to the Reading Terminal Market in Philadelphia they stopped at Mueller Chocolate Company and bought me this:
So, if I have to write the proverbial “what did you do on your summer vacation” essay….I’d say I had all kinds of summer fun….travelling to Maine, kayaking the Casco Bay, spending time with Nate and Jeff, straining my pee, eating a kidney, making dietary changes and sucking on nickels – what more could a girl ask for?